Tribal Consultation and Urban Confer on the Alzheimer’s Disease (AD) and other types of dementia Real-World Data Platform
U.S. Department of Health & Human Services
National Institute on Aging (NIA)
Tuesday, February 20, 2024
The National Institute on Aging (NIA), part of NIH under the U.S. Department of Health and Human Services, requests input on the development of the Alzheimer’s Disease (AD) and other types of dementia Real-World Data Platform. The Platform aims to serve as a central hub of secure access for many types of data collected from a variety of real-world sources in order to promote more inclusive clinical research and improve health outcomes for older adults and persons living with dementia.
The goal of this Tribal Consultation and Urban Confer is to gather input on the development of the Platform in such a way that recognizes Tribal sovereignty and Tribal data ownership; respects and protects the privacy of individuals and communities who are represented in the Platform; and helps ensure that knowledge and potential dementia treatments made possible because of the Platform are culturally appropriate and applicable to American Indians and Alaska Natives.